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      The Kidney Patient's Forum meets up to four times per year , and comprises of both Patients and Medical staff. Our aim is to improve Renal life . We are seeking volunteers from the CAPD, Pre-Dialysis, Haemo Dialysis and Transplanted patients to come forward and offer their views.

      E-mail: info@whkpa.org.uk

      Next meeting will be  Tuesday 11th March 2008

    • Attendees:

      Michael Horton,,Simon Fletcher , Kevin Riches, Karen Timothy ,Stuart Lindsey

      Apologies :

       Natalie Millidge, Chris Mayrick Vivienne Dodds.Simon Shandley, Kate Balfour, Grace Newman.

       

      Minute

      Reference

      Topic of Discussion

      For Action

      03 Transport

       

       Stricter patient eligibility controls were implemented by University Hospitals Birmingham to reduce the number of journeys undertaken by the Ambulance Service. Will try to compare criteria before next meeting.

      Mike Horton

       

       

       

      05 Medical

           

      Dialysis patient review clinic on floor 5 up and running. Evening patients are still TBA.  The regular 4 to 6 month clinic reviews (in clinic 2) still carry on.

       

      Forum advised  that a new Consultant is due to start in the Department  - Mr David Bennett – Jones who will be based at George Eliot and specialise in Chronic Kidney Disease (CKD) clinics.

       

      The format of all Local clinics will be set by Renal management to ensure a high standard of patient care. This includes a patient pre-clinic questionnaire , with a set path through ultrasound , x-ray and junior doctor clinic.

       

      Consultants

      Karen Timothy

       

       

       

       

      Simon Fletcher

      08 Communications

       

       

       

      08 Communications (contd)

      Good use of web site and Kidney Kourier as well as Hospital in-house methods.

       

      The idea of Patient Befrienders was raised – Will be advertised on web / in Kidney Kourier

       

       

      Check with Hospital Reception area Library to assertain what extra literature is required to cover Renal patients. Report back next meeting.

       

      Request that an initial leaflet be produced to welcome new patients into the Renal Department.

      All

       

      Michael Horton

       

       

      Michael Horton

       

       

      Michael Horton

       

      10 C.A.P.D

      Forum was informed that ‘Baxters and Clinovia’ are funding a support worker network to provide a physical presence too patients who are struggling in the morning to clear and re-set their APD machines.

       

      We will be the second site within the UK to be offered this facility, this is very good for the Trust , and excellent help for patients.

       

      Simon Fletcher

       

      13 eGFR

       

      The new ‘eGFR’ blood test is being introduced nationally. The test allows staging of Chronic Kidney Disease (CKD)  according to the estimated Glomerular Filtration Rate (eGFR)

       

      Normal range is >90 ml/min -  Over 40 years of age the normal range declines at a rate of 1ml/min/year

       

      Stage

      eGFR

      Description of classification (Adults)

      1

      > 90

      Kidney damage with normal or increased eGFR

      2

      60 - 89

      Kidney damage with mild eGFR fall

      3

      30 - 59

      Moderate fall in eGFR

      4

      15 - 29

      Severe fall in eGFR

      5

      <15

      Established Renal failure

       

      Simon Fletcher

      14 Care Pathways

       

       

       

      Pathways of Care for Renal patients will be tackled on an ongoing basis. As part of this process it was felt that a ‘patient friendly’ handout be produced by the Forum .

       

      It was noted that whatever patient information is produced there must be provision for multi languages

       

      All

       

       

       

       

      15 Transplant

      Services

       

      Re-planning layout of Ward 50 to facilitate a complete Transplant service has been delayed pending further review within the hospital.

      Simon Fletcher

      16 Satellite Dialysis Units

       

       

       

       Due to increasing demand funding has been agreed to increase all Satellite units to include twilight shifts.

       

      A  search is under way to identify land around Coventry (central / North West) on which to site a new Satellite Unit. Existing premises are also being viewed to identify potential sites to re-develop

      Simon Fletcher

      Karen Timothy

       

       

       

       

       

       

       

       

    • Report on the Kidney Patients Forum meeting 23rd January 2007

      Attendees:

      Michael Horton,,Simon Fletcher ,Nilesh Jogia, Kevin Riches,

      Apologies :

      Kate Balfour, Grace Newman,Stuart Lindsey, Natalie Millidge Karen Timothy, Chris Mayrick Vivienne Dodds.Simon Shandley

       

      Minute

      Reference

      Topic of Discussion

      For Action

      01 New Hospital

       

      Non-PFI equipment can be brought for the Renal department – after discussion with Staff

       

       

      All

       

      02 Prescriptions

       

      Medical staff should send the confirmation of drug changes to the patients GP as soon as possible.

      Simon Fletcher

       

      03 Transport

       

      The main guide is ,

                    Patients / GP’s are allowed to book the first journey of each separate ‘course of treatment’  

                    undertaken From there on it is a ‘Medical’ decision by the Hospital as to whether a patient

                    receives further transport.                                                                               

      Mike Horton

       

       

       

       

      04 Car Parking

       

      Authorised renal dialysis patients are being issued with an authorisation form that is exchanged – on a weekly basis – for a car park concessionary pass. Very wasteful system !!

      All committee

      05 Medical

           

      CLOSED – Twilight shift Doctor availability now OK

       

      Dialysis patient review clinic on floor 5 are now been programmed with their Dialysis session – this will allow patients and senior staff the opportunity to discuss treatment on a reqular basis. New Ambulance booking form has been designed and agreed to block book these patients. Evening patients are still TBA.  The regular 4 to 6 month clinic reviews (in clinic 2) still carry on.

      Simon Fletcher

       

      Consultants

      Karen Timothy

      06 Weigh Scales

       

      To be subject to ongoing review in line with Skanska equipment replacement programme..

      Mike Horton

      Karen Timothy

       

      07 Fresh Water

       

      CLOSED – subject to local management review

      Mike Horton

      Karen Timothy

       

      08 Communications

       

      Good use of web site and Kidney Kourier as well as Hospital in-house methods.

       

      Position and use of Notice Boards in new building is STILL to be resolved

       

      All

       

      Vivienne Dodds

      09 Hemo-DX

      Subject to local management review

       

      Alternative membranes,lines and s are been investigated to obtain cost reductions

      Stuart Lindsey

       

      Karen Timothy

      Simon Fletcher

       

      10 C A P D

       

      CLOSED – Subject to Forum committee requirements

       

       

      Natalie Millidge 

       

      11 DataCollecting

       

      CLOSED – Subject to Forum committee requirments 

              

      All

      12 Mission Statement

       

      12 Mission

      Statement

      (contd)

       

      It was made clear that the accounting procedures covering the Renal Department were complex – but the overall objectives of all the PCT’s involved is to eliminate / reduce waste and therefore costs.

       

      For the Renal Department to grow – patient numbers are expected to double in the next 10 years – we decided that we could make a difference by using our diverse skills and knowledge. Identification of specific area’s for investigation would be undertaken in conjunction with local management , and we would not undertake too great a task. 

       

      All

       

       

      All

       

      13 eGFR

       

      The new ‘eGFR’ blood test is being introduced nationally. The test allows staging of Chronic Kidney Disease (CKD)  according to the estimated Glomerular Filtration Rate (eGFR)

       

      Normal range is >90 ml/min -  Over 40 years of age the normal range declines at a rate of 1ml/min/year

       

       

      Stage

      eGFR

      Description of classification (Adults)

      1

      > 90

      Kidney damage with normal or increased eGFR

      2

      60 - 89

      Kidney damage with mild eGFR fall

      3

      30 - 59

      Moderate fall in eGFR

      4

      15 - 29

      Severe fall in eGFR

      5

      <15

      Established Renal failure

       

       

       

      Simon Fletcher

      13 eGFR

       

      The new ‘eGFR’ blood test is being introduced nationally. The test allows staging of Chronic Kidney Disease (CKD)  according to the estimated Glomerular Filtration Rate (eGFR)

       

      Normal range is >90 ml/min -  Over 40 years of age the normal range declines at a rate of 1ml/min/year

       

       

      Stage

      eGFR

      Description of classification (Adults)

      1

      > 90

      Kidney damage with normal or increased eGFR

      2

      60 - 89

      Kidney damage with mild eGFR fall

      3

      30 - 59

      Moderate fall in eGFR

      4

      15 - 29

      Severe fall in eGFR

      5

      <15

      Established Renal failure

       

       

       

      Simon Fletcher

      14 Care Pathways

       

       

      14 Care

      Pathways (contd)

      Research is going on to refine the Pathway of Care for Renal patients prior to them requesting access to Hospital resources. This includes the implementation of the ‘Choose and Book’ part of the new NHS Computer System.

       

      The (Hospital) internal Clinical Pathway of Care is also been reviewed / revised in order to reduce delays and meet the latest Department of Health  target of 18 weeks from initial doctors visit to declaration of ‘Final’ clinical outcome.

       

      These Pathways can be overtaken where the patient has been diagnosed with sudden Renal failure.

       

      It was noted that whatever patient information is produced there must be provision for multi languages

       

      All

       

       

       

      All

      15 Transplant

      Services

       

       

       

      Re-planning layout of Ward 50 to facilitate a complete Transplant service cantered on one area.

      This would include Pre-  and Post Transplant care

      All

       

       

      Forum Meeting: 12th September 2006

      During the first part of the meeting those present agreed that , now the new hospital was settling in, the majority of initial problems could be resolved using current procedures ie KPA , Local Management or suggestion box. Also available are the PALS ( Patient Advice and Liason Service) officers for the hospital and the Ambulance Service.

      The bulk of the meeting was taken –up with discussions on the role the Forum can perform . Various areas were highlighted as possible targets for review within the whole of the Renal Department. In conclusion we derived that we collectively have a wide variety of experience we could provide and would target our efforts to ensure maximum effect.

      MISSION STATEMENT

      To provide a resource to the Renal Management team capable of defining more effective and efficient methods of working across all Renal sections in-order to provide increasingly effective patient Pathways of care.

       

      • Attendees: Michael Horton,,Simon Fletcher ,Vivienne Dodds , Chris Meyrick ,Nilesh Jogia, Karan Timothy, Kate McCarthy,Kevin Riches, Simon Shanley
      Apologies : Kate Balfour, Grace Newman,Stuart Lindsey, Natalie Millidge
      Minute

      Reference

      Topic of Discussion

      For Action
      01 New Hospital Suggestion is that all minor issues be resolved through the normal channels

      ie Local Management , KPA or Suggestion Scheme

      Non-PFI equipment can be brought for the Renal department – after discussion with Staff

      		All

       

      KPA / All

      02 Prescriptions Medical staff should send the confirmation of drug changes to the patients GP as soon as possible. Simon Fletcher
      03 Transport A re-issue of the Eligibility Guidelines is going through the PCT committee and will be issued in a short time.

      The main guide is ,

      Patients / GP’s are allowed to book the first journey of each separate ‘course of treatment’

      undertaken From there on it is a ‘Medical’ decision by the Hospital as to whether a patient

      receives further transport.

      		Mike Horton

       

       

       
      04 Car Parking Barriers in operation from Monday (18/09)

      Authorised renal dialysis patients are being issued with an authorisation form that is exchanged – on a weekly basis – for a car park concessionary pass. This is only valid for dialysis days.

      		 All committee
      05 Medical

      		During night time effort has been made to ensure a Renal Registrar is available due to the large number of patients with variable requirements. Simon Fletcher

       

       
      06 Weigh Scales To be subject to ongoing review in line with Skanska equipment replacement programme.. Mike Horton

      Karen Timothy
      07 Fresh Water To be subject to ongoing review in line with Skanska policy for introduction of additional equipment and its on-going maintenance. Mike Horton

      Karen Timothy
      08 Communications Good use of web site and Kidney Kourier as well as Hospital in-house methods.

      Position and use of Notice Boards in new building is to be resolved

      		 All

      Vivienne Dodds

       
      09 Hemo-DX CLOSED – Subject to local management review Stuart Lindsey

      Karen Timothy
      10 C A P D CLOSED – Subject to Forum committee requirements

       

      		 Natalie Millidge
      11 Collecting

      		 CLOSED – Subject to Forum committee requirments

      		All
      12 Mission Statement The main objective of the meeting was the development of a general ‘Mission Statement’.

      It was made clear that the accounting procedures covering the Renal Department were complex – but the overall objectives of all the PCT’s involved is to eliminate / reduce waste and therefore costs.

      For the Renal Department to grow – patient numbers are expected double in the next 10 years – we decided that we could make a difference by using our diverse skills and knowledge. Identification of specific area’s for investigation would be undertaken in conjunction with local management , and we would not undertake too great a task.

      MISSION STATEMENT

      To provide a resource to the Renal Management team capable of defining more effective and efficient methods of working across all Renal sections in-order to provide increasingly effective patient Pathways of Care .

      		 All

    •